| (a) Data requests for research.
(1) Requests for confidential cancer data shall be
in writing and directed to: CancerData@dshs.texas.gov or Texas Cancer
Registry, Mail Code 1928, Department of State Health Services, P.O.
Box 149347, Austin, Texas 78714-9347.
(2) Written requests for confidential cancer data shall
meet the submission requirements of the department or its designated
Institutional Review Board (IRB) before release.
(3) The Texas Cancer Registry may release confidential
cancer data to state, federal, local, and other public agencies and
organizations if approved by the department or its designated IRB.
(4) The Texas Cancer Registry may release confidential
cancer data to private agencies, organizations, and associations if
approved by the department or its designated IRB.
(5) The Texas Cancer Registry may release confidential
cancer data to any other individual or entities for reasons deemed
necessary by the department to carry out the intent of the Act if
approved by the department or its designated IRB.
(b) Data requests for non-research purposes.
(1) The Texas Cancer Registry may provide reports containing
confidential cancer data back to the respective reporting entity from
records previously submitted to the Texas Cancer Registry from each
respective reporting entity for the purposes of case management and
administrative studies. These reports will not be released to any
other entity.
(2) The Texas Cancer Registry may release confidential
cancer data to other areas of the department, provided that the disclosure
is required or authorized by law. All communications of this nature
shall be clearly labeled "Confidential" and will follow established
departmental internal protocols and procedures.
(3) The Texas Cancer Registry may release confidential
cancer data to state, federal, local, and other public agencies and
organizations in accordance with subsection (a) of this section.
(4) The Texas Cancer Registry may release confidential
cancer data to any other individual or entities for reasons deemed
necessary to carry out the intent of the Act and in accordance with
subsection (a) of this section.
(5) An individual who submits a valid authorization
for release of an individual cancer record shall have access to review
or obtain copies of the information described in the authorization
for release.
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| Source Note: The provisions of this §91.12 adopted to be effective November 7, 2002, 27 TexReg 10387; amended to be effective July 9, 2006, 31 TexReg 5300; amended to be effective August 14, 2011, 36 TexReg 4963; amended to be effective April 2, 2017, 42 TexReg 1450; amended to be effective March 20, 2023, 48 TexReg 1563 |
